A large amount of information about osteoporosis and bone health is available on the internet. However, not all of the content that can be found on-line comes from reliable sources. The following links will take you to sites that are managed by professional societies, non-profit organizations or patient support groups where you can find scientifically accurate, evidence-based information on most metabolic bone disorders and skeletal dysplasias. While being well informed is important, we strongly recommend you consult with a health care professional before making any decisions about management of osteoporosis or any other metabolic bone diseases.
- National Osteoporosis Foundation
- International Osteoporosis Foundation
- The American Society for Bone and Mineral Research
- Paget’s Disease of Bone
- Fibrous Dysplasia Foundation
- Osteogenesis Imperfecta Foundation
- The X-linked Hypophosphatemic Rickets (XLH) Network
- International Fibrodysplasia Ossificans Progressiva Association
- Soft Bones Foundation (hypophosphatasia)
- International Skeletal Dysplasia Registry (ISDR)
- National Organization for Rare Disorders (NORD)
Additional information that you may find useful is available elsewhere in this site:
- Facts about osteoporosis
- Measuring bone density and fracture risk
- Osteoporosis medications: benefits and risks
- Osteonecrosis of the jaw (ONJ) and atypical femoral fractures
- Taking charge of your bone health
- Calcium, vitamin D and bone health
- Exercise and bone health
- Facts about Paget’s disease
Washington University School of Medicine does not endorse or guarantee the accuracy of information contained on websites on non-affiliated external sources. Read the School of Medicine’s Policy on Links to Third-Party Websites to learn more.